Tapscott, author of Grown Up Digital and Wikinomics writes:
The tensions between information freedom and personal control are exploding today and not simply because of the benefits of sharing information using new media. Rather there are massive commercial, government interests along with malevolent individuals that have a lot to benefit from each of us revealing highly granular personal information, much of it in the public domain by default, real time as we travel through life. The clear and present danger is the irreversible erosion of that most enabling of liberties: anonymity.
This comes from the first in a seven part series on privacy (‘Living out loud’) in the Huffington Post. It makes a good start laying the foundations for the tensions and debates which have been raging for a few years. Are we really social animals and therefore share because of some genetic imprint? Or have we been slowly persuaded to exchange more of our privacy for the promise of some social nirvana? Is the ‘radical transparency’ argued for by people such as those working for Facebook, a way to happiness or to greater profits for Zuckerburg and his ilk? And then there’s the information that we share unknowingly – the data scraped from our lives on a day to day, week to week basis, which is then available to be collected, collated and mined by companies, governments and sometimes criminals. We might get better at managing the data that is available to opt in/out of sharing, but the data that is being scraped without our knowledge?
It’s interesting that Tapscott’s article is published on the same day that a new ten-year strategy for changing how the NHS manages information has been published. Part of that managment is consent to access to private, patient data. So, in Chapter 5:
5.41 The Government has also committed to consulting on an amendment to the NHS Constitution. Following on from the independent review of information governance, this will make more explicit proposals for the ‘consent deal’ – and will ensure that all interested parties have a chance to express their views on how they would like consent for the sharing of personal information to be sought and recorded.
It’ll be interesting to see how this plays out in a world where we are less and less uncomfortable with default sharing in digital social networks. Will the argument be made that radical transparancy and the intrinsic good of sharing will lead to a better health service better health for all, or will there be a greater emphasis on privacy managment – that citizens are given the power and opportunity to say what information gets shared to whom and for how long. Such fine-grained data management is possible but is it expedient?
